_id Respondent ID do_you_confirm_that_you_have_read_and_understood_the_privacy are_you_a_carer_of_an_adult__child__or_both_ if_you_care_for_both__please_complete_a_survey_for_one_and_i do_you_currently_access_any_of_the_following_carer_breaks_ unsafe_ unsafe__2 unsafe__3 unsafe__4 unsafe__5 would_you_like_to_have_breaks_from_your_caring_role_ which_breaks_would_you_like_to_be_able_to_access_ unsafe__6 unsafe__7 unsafe__8 unsafe__9 unsafe__10 unsafe__11 what_type_of_break_would_you_feel_comfortable_using_ unsafe__12 unsafe__13 unsafe__14 unsafe__15 unsafe__16 unsafe__17 unsafe__18 do_you_rely_on_family_members_or_friends_to_enable_you_to_ta does_the_cared_for_person_have_any_cognitive_issues___or_ide what_are_the_barriers_for_you_to_using_breaks__if_any___tick unsafe__19 unsafe__20 unsafe__21 unsafe__22 unsafe__23 unsafe__24 unsafe__25 unsafe__26 unsafe__27 unsafe__28 unsafe__29 unsafe__30 unsafe__31 what_difference_would_a_break_mean_to_you__tick_all_that_app unsafe__32 unsafe__33 unsafe__34 unsafe__35 unsafe__36 unsafe__37 some_carers_have_told_us_about_innovative_solutions_to_getti would_you_like_to_continue_to_the__about_you__section_ what_is_your_age_range_ what_gender_do_you_identify_as_ is_the_gender_you_identify_with_the_same_as_your_sex_registe what_is_your_sexual_orientation_ what_is_your_ethnic_group_ 1 Response Response Response Regular short breaks from caring to enable you to do regular activities e.g. shopping, meeting friends or leisure activities Breaks which enable you to relax in your own home Breaks which allow you meet other carers, access support either with or without the person you care for A weekend break Respite breaks such as a week / fortnight / month enabling you to go away or remain at home but have respite from your caring role Breaks with the person you care for such as holidays together, with (or without) help and support with caring specific tasks Response Regular short breaks from caring to enable you to do regular activities e.g. shopping, meeting friends or leisure activities Breaks which enable you to relax in your own home Breaks which allow you to meet other carers, access support either with or without the person you care for A weekend break Respite breaks such as a week / fortnight / month enabling you to go away or remain at home but have respite from your caring role Breaks with the person you care for such as holidays together, with (or without) help and support with caring specific tasks One off breaks e.g. enabling you to attend hospital appointments etc Someone just to pop in to ensure the person I care for is ok, peace of mind whilst I am out Sitting service: e.g., someone to come and stay with the person you care for enabling you to go out or relax at home Care at home: e.g., someone to come into the home to provide care including personal care Day care where the person you care for goes to a club or activity Live in care Respite care where the person you care for goes elsewhere to be looked after e.g., care home, someone else’s home Family Break - Opportunity to go away with family and the cared for Someone to live at home that can provide up to 10 hours support a week (this option is called Homeshare York) Response Response The cost for the person I care for to be looked after by someone else (eg day care, sitting services, respite care) The cost of the break for myself (eg can’t afford to go anywhere, even if no cost for the person I care for) Too hard to organise (eg complex systems, given up trying) Person I care for has needs which are too complex, are too difficult to find places Person I care for is reluctant to let anyone else care for them or doesn’t recognise they have care needs Don’t know how to organise/ where to get help Not enough availability Complexities around caring for more than one person No-one to go away with if person I care for is being cared for elsewhere Unable to plan ahead due to circumstances of caring role Other commitments preventing Location of services not suitable Feeling too guilty, or would worry too much I do not trust other services to care for the person I look after Would help me keep going in my caring role Would enable me to work or undertake training or education Would enable me to do things that support my health and wellbeing such as leisure activities, meeting friends etc Would help me to manage my mental health/stress and emotions Would prevent me from burning out and needing care myself Would enable me to deal with my own health e.g. attend appointments, undergo treatment Would enable me to look after someone else e.g., childcare Response Response Response Response Response Response Response 2 118391420797 Yes Child Child Never Never Never Never Never Never Yes Yes I would like regular access Yes I would like regular access No Yes I would like to access ad hoc No Yes I would like regular access Yes I would like to access ad hoc 3 118391420329 Yes Both Child Never Never Never Never Never Never No 4 118391381519 Yes Child Child Never Never Never Never Never Sometimes Yes Yes I would like to access ad hoc Yes I would like to access ad hoc Yes I would like to access ad hoc Yes I would like regular access Yes I would like regular access Yes I would like to access ad hoc Yes I would like to access ad hoc Would not feel comfortable using Would not feel comfortable using Might consider using in the future Might consider using in the future Might consider using in the future Might consider using in the future Would definitely use now Would definitely use now Yes Yes The cost for the person I care for to be looked after by someone else (eg day care, sitting services, respite care) Too hard to organise (eg complex systems, given up trying) Person I care for has needs which are too complex, are too difficult to find places Person I care for is reluctant to let anyone else care for them or doesn’t recognise they have care needs Don’t know how to organise/ where to get help Not enough availability Feeling too guilty, or would worry too much I do not trust other services to care for the person I look after Would help me keep going in my caring role Would enable me to do things that support my health and wellbeing such as leisure activities, meeting friends etc Would help me to manage my mental health/stress and emotions Would prevent me from burning out and needing care myself Would enable me to deal with my own health e.g. attend appointments, undergo treatment No Yes, continue to this section Under 50 Female Yes Heterosexual or straight White - English / Welsh / Scottish / Northern Irish / British 5 118391370005 Yes Both Child Never Never Never Never Never Never Yes Yes I would like regular access Yes I would like to access ad hoc Yes I would like to access ad hoc Yes I would like regular access Yes I would like regular access Yes I would like regular access Yes I would like to access ad hoc Would definitely use now Would definitely use now Would definitely use now Would definitely use now Would not feel comfortable using Would definitely use now Would definitely use now Would not feel comfortable using No Yes The cost for the person I care for to be looked after by someone else (eg day care, sitting services, respite care) The cost of the break for myself (eg can’t afford to go anywhere, even if no cost for the person I care for) Would help me keep going in my caring role Would help me to manage my mental health/stress and emotions Would prevent me from burning out and needing care myself Would enable me to deal with my own health e.g. attend appointments, undergo treatment No Yes, continue to this section Under 50 Female Yes Heterosexual or straight White - English / Welsh / Scottish / Northern Irish / British 6 118391357079 Yes Child N/A Sometimes Never Never Sometimes Never Sometimes Yes Yes I would like regular access Yes I would like regular access Yes I would like to access ad hoc Yes I would like regular access Yes I would like regular access Yes I would like regular access Yes I would like regular access Would definitely use now Would definitely use now Would definitely use now Would definitely use now Would not feel comfortable using Might consider using in the future Would definitely use now Might consider using in the future Yes Yes The cost for the person I care for to be looked after by someone else (eg day care, sitting services, respite care) The cost of the break for myself (eg can’t afford to go anywhere, even if no cost for the person I care for) Too hard to organise (eg complex systems, given up trying) Person I care for has needs which are too complex, are too difficult to find places Person I care for is reluctant to let anyone else care for them or doesn’t recognise they have care needs Don’t know how to organise/ where to get help Not enough availability Unable to plan ahead due to circumstances of caring role Other commitments preventing Feeling too guilty, or would worry too much I do not trust other services to care for the person I look after Would help me keep going in my caring role Would enable me to work or undertake training or education Would enable me to do things that support my health and wellbeing such as leisure activities, meeting friends etc Would help me to manage my mental health/stress and emotions Would prevent me from burning out and needing care myself Would enable me to deal with my own health e.g. attend appointments, undergo treatment Would enable me to look after someone else e.g., childcare No Yes, continue to this section Under 50 Female Yes Gay or lesbian White - English / Welsh / Scottish / Northern Irish / British 7 118391347656 Yes Child Child Sometimes Never Never Never Never Sometimes Yes Yes I would like regular access Yes I would like regular access Yes I would like to access ad hoc Yes I would like to access ad hoc Yes I would like to access ad hoc Yes I would like regular access Yes I would like to access ad hoc Would definitely use now Would definitely use now Would not feel comfortable using Would definitely use now Would not feel comfortable using Would not feel comfortable using Would definitely use now Would not feel comfortable using No Yes The cost for the person I care for to be looked after by someone else (eg day care, sitting services, respite care) The cost of the break for myself (eg can’t afford to go anywhere, even if no cost for the person I care for) Too hard to organise (eg complex systems, given up trying) Not enough availability Complexities around caring for more than one person Would help me keep going in my caring role Would enable me to work or undertake training or education Would enable me to do things that support my health and wellbeing such as leisure activities, meeting friends etc Would help me to manage my mental health/stress and emotions Would prevent me from burning out and needing care myself Would enable me to deal with my own health e.g. attend appointments, undergo treatment Would enable me to look after someone else e.g., childcare No Yes, continue to this section Under 50 Female Yes Heterosexual or straight White - English / Welsh / Scottish / Northern Irish / British 8 118391344277 Yes Child Child Never Never Never Never Never Never Yes Yes I would like regular access Yes I would like regular access Yes I would like regular access Yes I would like regular access Yes I would like regular access Yes I would like regular access Yes I would like regular access Would not feel comfortable using Might consider using in the future Might consider using in the future Would definitely use now Would not feel comfortable using Would not feel comfortable using Would definitely use now Would not feel comfortable using Yes Yes The cost for the person I care for to be looked after by someone else (eg day care, sitting services, respite care) The cost of the break for myself (eg can’t afford to go anywhere, even if no cost for the person I care for) Too hard to organise (eg complex systems, given up trying) Don’t know how to organise/ where to get help Not enough availability No-one to go away with if person I care for is being cared for elsewhere Feeling too guilty, or would worry too much Would enable me to do things that support my health and wellbeing such as leisure activities, meeting friends etc Would help me to manage my mental health/stress and emotions Would prevent me from burning out and needing care myself No No, skip this section 9 118391338364 Yes Child N/A Never Never Sometimes Sometimes Never Sometimes Yes Yes I would like regular access Yes I would like to access ad hoc Yes I would like to access ad hoc Yes I would like to access ad hoc No Yes I would like to access ad hoc Yes I would like to access ad hoc Might consider using in the future Would definitely use now Would definitely use now Would definitely use now Would not feel comfortable using Would not feel comfortable using Would definitely use now Would not feel comfortable using Yes Yes The cost for the person I care for to be looked after by someone else (eg day care, sitting services, respite care) The cost of the break for myself (eg can’t afford to go anywhere, even if no cost for the person I care for) Complexities around caring for more than one person Would help me keep going in my caring role Would enable me to work or undertake training or education Would enable me to do things that support my health and wellbeing such as leisure activities, meeting friends etc Would help me to manage my mental health/stress and emotions Would prevent me from burning out and needing care myself Would enable me to deal with my own health e.g. attend appointments, undergo treatment Would enable me to look after someone else e.g., childcare Yes Yes, continue to this section Under 50 Female Yes Heterosexual or straight White - English / Welsh / Scottish / Northern Irish / British 10 118391334704 Yes Child Child Sometimes Sometimes Never Never Never Never Yes Yes I would like regular access Yes I would like regular access Yes I would like regular access Yes I would like regular access Yes I would like regular access Yes I would like to access ad hoc Yes I would like to access ad hoc Would definitely use now Would definitely use now Would definitely use now Would definitely use now Might consider using in the future Would definitely use now Would definitely use now Would definitely use now Yes Yes The cost for the person I care for to be looked after by someone else (eg day care, sitting services, respite care) The cost of the break for myself (eg can’t afford to go anywhere, even if no cost for the person I care for) Too hard to organise (eg complex systems, given up trying) Person I care for has needs which are too complex, are too difficult to find places Don’t know how to organise/ where to get help Unable to plan ahead due to circumstances of caring role I do not trust other services to care for the person I look after Would help me keep going in my caring role Would enable me to work or undertake training or education Would enable me to do things that support my health and wellbeing such as leisure activities, meeting friends etc Would help me to manage my mental health/stress and emotions Would prevent me from burning out and needing care myself Would enable me to deal with my own health e.g. attend appointments, undergo treatment No Yes, continue to this section Under 50 Female Yes Bisexual White - English / Welsh / Scottish / Northern Irish / British 11 118391290063 Yes Child N/A Sometimes Sometimes Never Never Never Never Yes Yes I would like regular access Yes I would like regular access Yes I would like to access ad hoc Yes I would like regular access Yes I would like regular access Yes I would like regular access Yes I would like regular access Would definitely use now Would definitely use now Would definitely use now Would definitely use now Would not feel comfortable using Might consider using in the future Would definitely use now Would not feel comfortable using Yes Yes The cost for the person I care for to be looked after by someone else (eg day care, sitting services, respite care) The cost of the break for myself (eg can’t afford to go anywhere, even if no cost for the person I care for) Too hard to organise (eg complex systems, given up trying) Person I care for has needs which are too complex, are too difficult to find places Don’t know how to organise/ where to get help Not enough availability Unable to plan ahead due to circumstances of caring role Other commitments preventing Feeling too guilty, or would worry too much Would help me keep going in my caring role Would enable me to do things that support my health and wellbeing such as leisure activities, meeting friends etc Would help me to manage my mental health/stress and emotions Would prevent me from burning out and needing care myself Would enable me to deal with my own health e.g. attend appointments, undergo treatment No No, skip this section 12 118391186279 Yes Child Child Never Never Never Never Never Never Yes Yes I would like regular access Yes I would like regular access Yes I would like regular access Yes I would like regular access Yes I would like regular access Yes I would like regular access Yes I would like regular access Would definitely use now Would definitely use now Would not feel comfortable using Might consider using in the future Would not feel comfortable using Might consider using in the future Would definitely use now Might consider using in the future No Yes The cost for the person I care for to be looked after by someone else (eg day care, sitting services, respite care) The cost of the break for myself (eg can’t afford to go anywhere, even if no cost for the person I care for) Person I care for has needs which are too complex, are too difficult to find places Person I care for is reluctant to let anyone else care for them or doesn’t recognise they have care needs Don’t know how to organise/ where to get help Feeling too guilty, or would worry too much Would help me keep going in my caring role Would enable me to work or undertake training or education Would enable me to do things that support my health and wellbeing such as leisure activities, meeting friends etc Would help me to manage my mental health/stress and emotions Would prevent me from burning out and needing care myself Would enable me to deal with my own health e.g. attend appointments, undergo treatment No Yes, continue to this section Under 50 Female Yes Heterosexual or straight White - English / Welsh / Scottish / Northern Irish / British 13 118391171838 Yes Child N/A Never Never Never Never Never Never Yes Yes I would like regular access Yes I would like regular access Yes I would like regular access No Yes I would like regular access Yes I would like regular access No Would not feel comfortable using Would definitely use now Would not feel comfortable using Would definitely use now Would not feel comfortable using Would not feel comfortable using Would definitely use now Might consider using in the future No Yes The cost for the person I care for to be looked after by someone else (eg day care, sitting services, respite care) Person I care for is reluctant to let anyone else care for them or doesn’t recognise they have care needs Don’t know how to organise/ where to get help Not enough availability Feeling too guilty, or would worry too much Would help me keep going in my caring role Would enable me to work or undertake training or education Would enable me to do things that support my health and wellbeing such as leisure activities, meeting friends etc Would help me to manage my mental health/stress and emotions Would prevent me from burning out and needing care myself Yes Yes, continue to this section Under 50 Female Yes Heterosexual or straight White - English / Welsh / Scottish / Northern Irish / British 14 118391161549 Yes 15 118391152191 Yes Adult Adult Sometimes Never Never Never Never Never Yes Yes I would like regular access Yes I would like regular access Yes I would like regular access Yes I would like regular access Yes I would like regular access Yes I would like regular access Yes I would like regular access Might consider using in the future Might consider using in the future Might consider using in the future Would definitely use now Might consider using in the future Might consider using in the future Might consider using in the future Might consider using in the future Yes Yes The cost for the person I care for to be looked after by someone else (eg day care, sitting services, respite care) Person I care for is reluctant to let anyone else care for them or doesn’t recognise they have care needs Unable to plan ahead due to circumstances of caring role Feeling too guilty, or would worry too much Would help me keep going in my caring role Would enable me to work or undertake training or education Would enable me to do things that support my health and wellbeing such as leisure activities, meeting friends etc Would help me to manage my mental health/stress and emotions Would prevent me from burning out and needing care myself Would enable me to deal with my own health e.g. attend appointments, undergo treatment No Yes, continue to this section 50-59 Male Yes Heterosexual or straight White - English / Welsh / Scottish / Northern Irish / British 16 118391148684 Yes Child Child Never Never Never Never Never Never Yes Yes I would like regular access Yes I would like regular access Yes I would like regular access Yes I would like regular access Yes I would like regular access Yes I would like regular access Yes I would like regular access Would definitely use now Would definitely use now Would not feel comfortable using Would definitely use now Would not feel comfortable using Might consider using in the future Would definitely use now Would not feel comfortable using Yes Yes The cost for the person I care for to be looked after by someone else (eg day care, sitting services, respite care) The cost of the break for myself (eg can’t afford to go anywhere, even if no cost for the person I care for) Too hard to organise (eg complex systems, given up trying) Person I care for has needs which are too complex, are too difficult to find places Don’t know how to organise/ where to get help Complexities around caring for more than one person Feeling too guilty, or would worry too much I do not trust other services to care for the person I look after Would help me keep going in my caring role Would enable me to work or undertake training or education Would enable me to do things that support my health and wellbeing such as leisure activities, meeting friends etc Would help me to manage my mental health/stress and emotions Would prevent me from burning out and needing care myself Would enable me to deal with my own health e.g. attend appointments, undergo treatment No Yes, continue to this section Under 50 Male Yes Heterosexual or straight White - English / Welsh / Scottish / Northern Irish / British 17 118391141922 Yes Child Child Regularly Regularly Never Sometimes Never Never Yes Yes I would like regular access Yes I would like regular access Yes I would like regular access Yes I would like regular access Yes I would like regular access Yes I would like regular access Yes I would like regular access Would not feel comfortable using Would not feel comfortable using Might consider using in the future Might consider using in the future Might consider using in the future Might consider using in the future Would definitely use now Would not feel comfortable using No Yes The cost for the person I care for to be looked after by someone else (eg day care, sitting services, respite care) Person I care for has needs which are too complex, are too difficult to find places Don’t know how to organise/ where to get help Not enough availability Location of services not suitable Feeling too guilty, or would worry too much Would help me keep going in my caring role Would enable me to do things that support my health and wellbeing such as leisure activities, meeting friends etc Would help me to manage my mental health/stress and emotions Would prevent me from burning out and needing care myself Would enable me to deal with my own health e.g. attend appointments, undergo treatment No No, skip this section 18 118391130507 Yes Child Child Sometimes Never Sometimes Never Never Sometimes Yes No Yes I would like regular access Yes I would like regular access Yes I would like regular access Yes I would like to access ad hoc Yes I would like regular access Yes I would like regular access Would not feel comfortable using Would definitely use now Would definitely use now Would definitely use now Would not feel comfortable using Would definitely use now Would definitely use now Might consider using in the future Yes Yes The cost for the person I care for to be looked after by someone else (eg day care, sitting services, respite care) Person I care for has needs which are too complex, are too difficult to find places Not enough availability Would help me keep going in my caring role Would enable me to do things that support my health and wellbeing such as leisure activities, meeting friends etc Would prevent me from burning out and needing care myself Would enable me to look after someone else e.g., childcare No No, skip this section 19 118391129161 Yes 20 118390984970 Yes Child N/A Never Never Never Never Never Never Yes Yes I would like regular access Yes I would like regular access Yes I would like regular access Yes I would like to access ad hoc No Yes I would like to access ad hoc Yes I would like to access ad hoc Would not feel comfortable using Would definitely use now Might consider using in the future Would definitely use now Might consider using in the future Would not feel comfortable using Would definitely use now Might consider using in the future Yes Yes Too hard to organise (eg complex systems, given up trying) Don’t know how to organise/ where to get help Not enough availability Feeling too guilty, or would worry too much I do not trust other services to care for the person I look after Would help me keep going in my caring role Would enable me to work or undertake training or education Would enable me to do things that support my health and wellbeing such as leisure activities, meeting friends etc Would help me to manage my mental health/stress and emotions Would prevent me from burning out and needing care myself Would enable me to deal with my own health e.g. attend appointments, undergo treatment Would enable me to look after someone else e.g., childcare No Yes, continue to this section Under 50 Female Yes Heterosexual or straight White - English / Welsh / Scottish / Northern Irish / British 21 118390980794 Yes Adult Adult Never Never Sometimes Never Yes Yes I would like regular access Yes I would like to access ad hoc Yes I would like to access ad hoc Yes I would like regular access Yes I would like to access ad hoc Yes I would like regular access Yes I would like to access ad hoc Would definitely use now Would definitely use now Would definitely use now Would definitely use now Would definitely use now Would definitely use now Would definitely use now Would definitely use now No Yes The cost for the person I care for to be looked after by someone else (eg day care, sitting services, respite care) The cost of the break for myself (eg can’t afford to go anywhere, even if no cost for the person I care for) Person I care for has needs which are too complex, are too difficult to find places Person I care for is reluctant to let anyone else care for them or doesn’t recognise they have care needs Not enough availability Complexities around caring for more than one person No-one to go away with if person I care for is being cared for elsewhere Unable to plan ahead due to circumstances of caring role I do not trust other services to care for the person I look after Would help me keep going in my caring role Would enable me to work or undertake training or education Would enable me to do things that support my health and wellbeing such as leisure activities, meeting friends etc Would help me to manage my mental health/stress and emotions Would prevent me from burning out and needing care myself Would enable me to deal with my own health e.g. attend appointments, undergo treatment Would enable me to look after someone else e.g., childcare No Yes, continue to this section 50-59 Female Yes Heterosexual or straight White - English / Welsh / Scottish / Northern Irish / British 22 118390975777 Yes Child Child Regularly Sometimes Sometimes Sometimes Never Sometimes Yes Yes I would like regular access Yes I would like regular access Yes I would like to access ad hoc Yes I would like regular access Yes I would like regular access Yes I would like to access ad hoc Yes I would like to access ad hoc Might consider using in the future Might consider using in the future Would definitely use now Would definitely use now Might consider using in the future Would definitely use now Would definitely use now Would not feel comfortable using No Yes The cost for the person I care for to be looked after by someone else (eg day care, sitting services, respite care) Too hard to organise (eg complex systems, given up trying) Person I care for has needs which are too complex, are too difficult to find places Not enough availability Feeling too guilty, or would worry too much I do not trust other services to care for the person I look after Would help me keep going in my caring role Would enable me to work or undertake training or education Would enable me to do things that support my health and wellbeing such as leisure activities, meeting friends etc Would help me to manage my mental health/stress and emotions Would prevent me from burning out and needing care myself Would enable me to deal with my own health e.g. attend appointments, undergo treatment No No, skip this section 23 118390954548 Yes Both Child Never Never Never Never Never Never Yes Yes I would like to access ad hoc Yes I would like to access ad hoc Yes I would like to access ad hoc Yes I would like to access ad hoc Yes I would like to access ad hoc Yes I would like to access ad hoc Yes I would like to access ad hoc 24 118390948182 Yes 25 118390943293 Yes 26 118390930070 Yes Child Child Never Never Never Never Never Sometimes Yes Yes I would like to access ad hoc Yes I would like to access ad hoc No Yes I would like to access ad hoc Yes I would like to access ad hoc Yes I would like regular access No Would not feel comfortable using Would not feel comfortable using Would not feel comfortable using Would definitely use now Would not feel comfortable using Might consider using in the future Would definitely use now Would not feel comfortable using No Yes Person I care for is reluctant to let anyone else care for them or doesn’t recognise they have care needs Don’t know how to organise/ where to get help Not enough availability Complexities around caring for more than one person Feeling too guilty, or would worry too much Would enable me to do things that support my health and wellbeing such as leisure activities, meeting friends etc Would help me to manage my mental health/stress and emotions No Yes, continue to this section Under 50 Female Yes Heterosexual or straight White - English / Welsh / Scottish / Northern Irish / British 27 118390927908 Yes Child Child Never Never Never Never Never Never Yes Yes I would like to access ad hoc Yes I would like to access ad hoc Yes I would like to access ad hoc Yes I would like to access ad hoc Yes I would like to access ad hoc Yes I would like to access ad hoc No Might consider using in the future Might consider using in the future Would not feel comfortable using Might consider using in the future Would not feel comfortable using Would not feel comfortable using Would definitely use now Would not feel comfortable using Yes No The cost of the break for myself (eg can’t afford to go anywhere, even if no cost for the person I care for) Person I care for has needs which are too complex, are too difficult to find places Person I care for is reluctant to let anyone else care for them or doesn’t recognise they have care needs Don’t know how to organise/ where to get help Feeling too guilty, or would worry too much Would help me keep going in my caring role Would enable me to do things that support my health and wellbeing such as leisure activities, meeting friends etc Would help me to manage my mental health/stress and emotions Would prevent me from burning out and needing care myself No Yes, continue to this section Under 50 Female Yes Heterosexual or straight White - English / Welsh / Scottish / Northern Irish / British 28 118390928070 Yes Child Child Never Never Never Never Never Sometimes Yes Yes I would like regular access Yes I would like regular access Yes I would like to access ad hoc Yes I would like regular access Yes I would like regular access Yes I would like regular access Yes I would like to access ad hoc Might consider using in the future Would definitely use now Would definitely use now Would definitely use now Would not feel comfortable using Might consider using in the future Would definitely use now Would not feel comfortable using Yes No The cost for the person I care for to be looked after by someone else (eg day care, sitting services, respite care) The cost of the break for myself (eg can’t afford to go anywhere, even if no cost for the person I care for) Not enough availability Would enable me to do things that support my health and wellbeing such as leisure activities, meeting friends etc Would help me to manage my mental health/stress and emotions Would prevent me from burning out and needing care myself No No, skip this section 29 118390922938 Yes Child Never Sometimes Never Never Never Never Yes Yes I would like to access ad hoc Yes I would like regular access Yes I would like to access ad hoc Yes I would like regular access Yes I would like regular access No Yes I would like regular access Would not feel comfortable using Might consider using in the future Might consider using in the future Would not feel comfortable using Would not feel comfortable using Would not feel comfortable using Would definitely use now Might consider using in the future Yes Yes The cost for the person I care for to be looked after by someone else (eg day care, sitting services, respite care) The cost of the break for myself (eg can’t afford to go anywhere, even if no cost for the person I care for) Too hard to organise (eg complex systems, given up trying) Person I care for has needs which are too complex, are too difficult to find places Person I care for is reluctant to let anyone else care for them or doesn’t recognise they have care needs Other commitments preventing I do not trust other services to care for the person I look after Would help me keep going in my caring role Would enable me to work or undertake training or education Would enable me to do things that support my health and wellbeing such as leisure activities, meeting friends etc Would help me to manage my mental health/stress and emotions Would prevent me from burning out and needing care myself Would enable me to deal with my own health e.g. attend appointments, undergo treatment Would enable me to look after someone else e.g., childcare No, skip this section 30 118390920190 Yes Child Never Never Never Never Never Sometimes Yes Yes I would like to access ad hoc Yes I would like regular access Yes I would like regular access Yes I would like regular access Yes I would like to access ad hoc Yes I would like regular access Yes I would like to access ad hoc Would not feel comfortable using Might consider using in the future Would not feel comfortable using Might consider using in the future Would not feel comfortable using Would not feel comfortable using Would definitely use now Would not feel comfortable using Yes Yes The cost for the person I care for to be looked after by someone else (eg day care, sitting services, respite care) The cost of the break for myself (eg can’t afford to go anywhere, even if no cost for the person I care for) Too hard to organise (eg complex systems, given up trying) Person I care for has needs which are too complex, are too difficult to find places Person I care for is reluctant to let anyone else care for them or doesn’t recognise they have care needs No-one to go away with if person I care for is being cared for elsewhere Other commitments preventing Feeling too guilty, or would worry too much Would help me keep going in my caring role Would enable me to do things that support my health and wellbeing such as leisure activities, meeting friends etc Would help me to manage my mental health/stress and emotions Would prevent me from burning out and needing care myself Would enable me to deal with my own health e.g. attend appointments, undergo treatment No Yes, continue to this section Under 50 Female Yes Heterosexual or straight White - English / Welsh / Scottish / Northern Irish / British 31 118390916797 Yes Child Child Sometimes Never Sometimes Never Never Never Yes 32 118390902421 Yes Child N/A Never Never Never Never Never Sometimes No Would not feel comfortable using Would not feel comfortable using Would not feel comfortable using Would not feel comfortable using Would not feel comfortable using Would not feel comfortable using Would definitely use now Would not feel comfortable using Yes Yes Would help me keep going in my caring role Would help me to manage my mental health/stress and emotions Would prevent me from burning out and needing care myself No Yes, continue to this section Under 50 Female Yes Prefer not to say White - English / Welsh / Scottish / Northern Irish / British 33 118390901477 Yes 34 118390891792 Yes Child N/A Regularly Sometimes Sometimes Never Never Yes Yes I would like regular access Yes I would like regular access Yes I would like regular access Yes I would like regular access Yes I would like to access ad hoc Yes I would like to access ad hoc Yes I would like to access ad hoc Would definitely use now Would definitely use now Would definitely use now Would definitely use now Might consider using in the future Would not feel comfortable using Would definitely use now Would definitely use now No Yes The cost for the person I care for to be looked after by someone else (eg day care, sitting services, respite care) The cost of the break for myself (eg can’t afford to go anywhere, even if no cost for the person I care for) Not enough availability Would help me keep going in my caring role Would enable me to do things that support my health and wellbeing such as leisure activities, meeting friends etc Would help me to manage my mental health/stress and emotions Would prevent me from burning out and needing care myself Would enable me to deal with my own health e.g. attend appointments, undergo treatment No Yes, continue to this section Under 50 Female Yes Heterosexual or straight White - English / Welsh / Scottish / Northern Irish / British 35 118390874727 Yes 36 118390816122 Yes Child Child Never Never Never Never Never Never Yes 37 118390627201 Yes Child N/A Never Never Never Never Never Sometimes Yes Yes I would like to access ad hoc No No No No Yes I would like to access ad hoc Yes I would like to access ad hoc Would not feel comfortable using Might consider using in the future Would not feel comfortable using Would definitely use now Would not feel comfortable using Would not feel comfortable using Would definitely use now Would not feel comfortable using Yes Yes The cost for the person I care for to be looked after by someone else (eg day care, sitting services, respite care) The cost of the break for myself (eg can’t afford to go anywhere, even if no cost for the person I care for) Person I care for has needs which are too complex, are too difficult to find places Person I care for is reluctant to let anyone else care for them or doesn’t recognise they have care needs Don’t know how to organise/ where to get help Complexities around caring for more than one person Feeling too guilty, or would worry too much Would enable me to work or undertake training or education Would enable me to do things that support my health and wellbeing such as leisure activities, meeting friends etc Would help me to manage my mental health/stress and emotions No Yes, continue to this section Under 50 Female Yes Heterosexual or straight White - English / Welsh / Scottish / Northern Irish / British 38 118390607291 Yes 39 118390594755 Yes Adult Adult Never Never Never Never Never Never Yes Yes I would like to access ad hoc No No No No Yes I would like to access ad hoc Yes I would like to access ad hoc Might consider using in the future Might consider using in the future Would not feel comfortable using Might consider using in the future Would not feel comfortable using Might consider using in the future Would not feel comfortable using Would not feel comfortable using No Yes Would enable me to do things that support my health and wellbeing such as leisure activities, meeting friends etc Would enable me to deal with my own health e.g. attend appointments, undergo treatment No Yes, continue to this section 70-79 Female Yes Heterosexual or straight White - English / Welsh / Scottish / Northern Irish / British 40 118390582029 Yes Both Child Sometimes Sometimes Sometimes Never Never Sometimes Yes Yes I would like regular access Yes I would like regular access Yes I would like to access ad hoc Yes I would like to access ad hoc Yes I would like regular access Yes I would like to access ad hoc Yes I would like to access ad hoc Would not feel comfortable using Might consider using in the future Might consider using in the future Would definitely use now Would not feel comfortable using Might consider using in the future Would definitely use now Would not feel comfortable using Yes Yes The cost for the person I care for to be looked after by someone else (eg day care, sitting services, respite care) The cost of the break for myself (eg can’t afford to go anywhere, even if no cost for the person I care for) Too hard to organise (eg complex systems, given up trying) Person I care for has needs which are too complex, are too difficult to find places Person I care for is reluctant to let anyone else care for them or doesn’t recognise they have care needs Complexities around caring for more than one person Would help me keep going in my caring role Would enable me to do things that support my health and wellbeing such as leisure activities, meeting friends etc Would help me to manage my mental health/stress and emotions Would enable me to deal with my own health e.g. attend appointments, undergo treatment Would enable me to look after someone else e.g., childcare No Yes, continue to this section 50-59 Female Yes Heterosexual or straight White - English / Welsh / Scottish / Northern Irish / British 41 118390565997 Yes Adult N/A Never Never Sometimes Never Never Sometimes Yes Yes I would like regular access No Yes I would like to access ad hoc Yes I would like to access ad hoc No Yes I would like to access ad hoc Yes I would like to access ad hoc Might consider using in the future Would definitely use now Would not feel comfortable using Would definitely use now Would not feel comfortable using Might consider using in the future Might consider using in the future Might consider using in the future Yes Yes Too hard to organise (eg complex systems, given up trying) Don’t know how to organise/ where to get help Feeling too guilty, or would worry too much I do not trust other services to care for the person I look after Would help me keep going in my caring role Would enable me to work or undertake training or education Would enable me to do things that support my health and wellbeing such as leisure activities, meeting friends etc Would help me to manage my mental health/stress and emotions Would prevent me from burning out and needing care myself Would enable me to deal with my own health e.g. attend appointments, undergo treatment No Yes, continue to this section 50-59 Female Yes Heterosexual or straight White - English / Welsh / Scottish / Northern Irish / British 42 118390280446 Yes Adult N/A Regularly Regularly Never Sometimes Never Never Yes No No Yes I would like to access ad hoc No Yes I would like to access ad hoc Yes I would like regular access No Might consider using in the future Might consider using in the future Might consider using in the future Might consider using in the future Might consider using in the future Might consider using in the future Would definitely use now Might consider using in the future Yes No The cost of the break for myself (eg can’t afford to go anywhere, even if no cost for the person I care for) Person I care for is reluctant to let anyone else care for them or doesn’t recognise they have care needs Don’t know how to organise/ where to get help Feeling too guilty, or would worry too much Would help me keep going in my caring role Would help me to manage my mental health/stress and emotions No Yes, continue to this section Under 50 Female Yes Heterosexual or straight White - English / Welsh / Scottish / Northern Irish / British 43 118389746877 Yes Adult Adult Regularly Sometimes Never Never Never Regularly No 44 118389646921 Yes Adult 45 118389365397 Yes Adult N/A Never Never Never Never Never Sometimes Yes Yes I would like to access ad hoc Yes I would like to access ad hoc Yes I would like to access ad hoc Yes I would like to access ad hoc Yes I would like to access ad hoc Yes I would like to access ad hoc No Would not feel comfortable using Might consider using in the future Would not feel comfortable using Would definitely use now Would not feel comfortable using Would definitely use now Might consider using in the future Would not feel comfortable using Yes Yes Not enough availability Would enable me to do things that support my health and wellbeing such as leisure activities, meeting friends etc Would help me to manage my mental health/stress and emotions Would prevent me from burning out and needing care myself No Yes, continue to this section 60-69 Female Yes Heterosexual or straight White - English / Welsh / Scottish / Northern Irish / British 46 118388807102 Yes Adult Adult Sometimes Never Never Never Never Sometimes Yes No Yes I would like to access ad hoc Yes I would like to access ad hoc Yes I would like to access ad hoc Yes I would like regular access Yes I would like to access ad hoc No Would not feel comfortable using Would definitely use now Would definitely use now Would definitely use now Might consider using in the future Might consider using in the future Would definitely use now Would not feel comfortable using Yes Yes The cost for the person I care for to be looked after by someone else (eg day care, sitting services, respite care) Person I care for is reluctant to let anyone else care for them or doesn’t recognise they have care needs Feeling too guilty, or would worry too much I do not trust other services to care for the person I look after Would help me keep going in my caring role Would help me to manage my mental health/stress and emotions Would prevent me from burning out and needing care myself No Yes, continue to this section 60-69 Female Yes Heterosexual or straight White - English / Welsh / Scottish / Northern Irish / British 47 118388785420 Yes Adult Adult Sometimes Sometimes Never Never Never Never Yes Yes I would like regular access Yes I would like regular access No No No No Yes I would like to access ad hoc Might consider using in the future Might consider using in the future Might consider using in the future Might consider using in the future Might consider using in the future Might consider using in the future Might consider using in the future Would not feel comfortable using Yes Yes Person I care for is reluctant to let anyone else care for them or doesn’t recognise they have care needs Would help me keep going in my caring role Would enable me to work or undertake training or education Would enable me to do things that support my health and wellbeing such as leisure activities, meeting friends etc Would help me to manage my mental health/stress and emotions Would enable me to deal with my own health e.g. attend appointments, undergo treatment No No, skip this section 48 118388780997 Yes 49 118388747547 Yes Adult Adult Regularly Regularly Sometimes Never Sometimes Sometimes Yes Yes I would like to access ad hoc Yes I would like to access ad hoc Yes I would like to access ad hoc Yes I would like regular access Yes I would like regular access Yes I would like to access ad hoc Yes I would like regular access Would not feel comfortable using Would definitely use now Might consider using in the future No Yes Person I care for is reluctant to let anyone else care for them or doesn’t recognise they have care needs Complexities around caring for more than one person Would enable me to do things that support my health and wellbeing such as leisure activities, meeting friends etc Would help me to manage my mental health/stress and emotions Would prevent me from burning out and needing care myself Would enable me to deal with my own health e.g. attend appointments, undergo treatment No No, skip this section 50 118388736685 Yes Child Child Never Never Never Never Never Never Yes Yes I would like regular access Yes I would like regular access Yes I would like regular access Would definitely use now Yes Yes The cost for the person I care for to be looked after by someone else (eg day care, sitting services, respite care) The cost of the break for myself (eg can’t afford to go anywhere, even if no cost for the person I care for) Too hard to organise (eg complex systems, given up trying) Person I care for is reluctant to let anyone else care for them or doesn’t recognise they have care needs Unable to plan ahead due to circumstances of caring role Other commitments preventing Feeling too guilty, or would worry too much Would help me keep going in my caring role Would enable me to work or undertake training or education No Yes, continue to this section Under 50 Female Yes Heterosexual or straight White - English / Welsh / Scottish / Northern Irish / British 51 118386987382 Yes Adult Adult Never Never Regularly Never Never Never Yes Yes I would like regular access Yes I would like regular access Yes I would like regular access Yes I would like regular access Yes I would like regular access Yes I would like regular access Yes I would like regular access Would definitely use now Would definitely use now Would definitely use now Would definitely use now Yes Yes The cost for the person I care for to be looked after by someone else (eg day care, sitting services, respite care) The cost of the break for myself (eg can’t afford to go anywhere, even if no cost for the person I care for) Person I care for has needs which are too complex, are too difficult to find places Person I care for is reluctant to let anyone else care for them or doesn’t recognise they have care needs Not enough availability Complexities around caring for more than one person No-one to go away with if person I care for is being cared for elsewhere Feeling too guilty, or would worry too much I do not trust other services to care for the person I look after Would help me keep going in my caring role Would enable me to do things that support my health and wellbeing such as leisure activities, meeting friends etc Would help me to manage my mental health/stress and emotions Would prevent me from burning out and needing care myself No Yes, continue to this section 70-79 Female Yes Heterosexual or straight White - English / Welsh / Scottish / Northern Irish / British 52 118386985947 Yes Adult Adult Regularly Sometimes Sometimes Never Never No No No Other commitments preventing Would enable me to do things that support my health and wellbeing such as leisure activities, meeting friends etc Would help me to manage my mental health/stress and emotions Would prevent me from burning out and needing care myself No Yes, continue to this section 50-59 Female Yes Prefer not to say White - English / Welsh / Scottish / Northern Irish / British 53 118386984507 Yes Both Adult Never Never Sometimes Never Never Yes Yes I would like regular access Yes I would like to access ad hoc Yes I would like regular access Yes I would like regular access Yes I would like regular access Yes I would like regular access Yes I would like regular access Might consider using in the future Might consider using in the future Might consider using in the future Might consider using in the future Might consider using in the future Might consider using in the future Might consider using in the future Might consider using in the future No Yes Person I care for is reluctant to let anyone else care for them or doesn’t recognise they have care needs I do not trust other services to care for the person I look after Would enable me to do things that support my health and wellbeing such as leisure activities, meeting friends etc Would prevent me from burning out and needing care myself Would enable me to deal with my own health e.g. attend appointments, undergo treatment Yes Yes, continue to this section 70-79 Male Yes Heterosexual or straight White - English / Welsh / Scottish / Northern Irish / British 54 118386982808 Yes Adult N/A Never Never Never Never Never Never Yes Yes I would like to access ad hoc Yes I would like to access ad hoc Yes I would like to access ad hoc Yes I would like to access ad hoc No No Yes I would like regular access Might consider using in the future Might consider using in the future Might consider using in the future Might consider using in the future Would not feel comfortable using Would definitely use now Would not feel comfortable using Might consider using in the future Yes Yes The cost for the person I care for to be looked after by someone else (eg day care, sitting services, respite care) The cost of the break for myself (eg can’t afford to go anywhere, even if no cost for the person I care for) Too hard to organise (eg complex systems, given up trying) Person I care for has needs which are too complex, are too difficult to find places Don’t know how to organise/ where to get help Not enough availability No-one to go away with if person I care for is being cared for elsewhere Unable to plan ahead due to circumstances of caring role Other commitments preventing Location of services not suitable Feeling too guilty, or would worry too much Would help me keep going in my caring role Would enable me to do things that support my health and wellbeing such as leisure activities, meeting friends etc Would help me to manage my mental health/stress and emotions Would prevent me from burning out and needing care myself Would enable me to deal with my own health e.g. attend appointments, undergo treatment No Yes, continue to this section 70-79 Female Yes Heterosexual or straight White - English / Welsh / Scottish / Northern Irish / British 55 118386981014 Yes Adult Adult Sometimes Sometimes Sometimes Sometimes Sometimes Never Yes No Yes I would like to access ad hoc Yes I would like to access ad hoc Yes I would like to access ad hoc Would definitely use now Yes Yes Would help me keep going in my caring role No Yes, continue to this section 70-79 Female Yes Heterosexual or straight White - English / Welsh / Scottish / Northern Irish / British 56 118386978859 Yes Adult Sometimes Sometimes Never Never Never Never Yes Yes I would like regular access Yes I would like regular access Yes I would like to access ad hoc Yes I would like regular access Yes I would like to access ad hoc Yes I would like regular access Would definitely use now Would definitely use now Might consider using in the future Would definitely use now Would not feel comfortable using Might consider using in the future Would not feel comfortable using Might consider using in the future Yes Yes Person I care for is reluctant to let anyone else care for them or doesn’t recognise they have care needs Unable to plan ahead due to circumstances of caring role Would help me keep going in my caring role Would enable me to do things that support my health and wellbeing such as leisure activities, meeting friends etc Would prevent me from burning out and needing care myself No Yes, continue to this section 70-79 Female Yes Heterosexual or straight White - English / Welsh / Scottish / Northern Irish / British 57 118386977022 Yes Adult Adult Regularly Regularly Regularly Sometimes Sometimes Never No Would not feel comfortable using Would not feel comfortable using Would not feel comfortable using Would not feel comfortable using Would not feel comfortable using Would not feel comfortable using Would not feel comfortable using Would not feel comfortable using No No No Yes, continue to this section 70-79 Female Yes Bisexual White - English / Welsh / Scottish / Northern Irish / British 58 118386973071 Yes Adult N/A Never Never Sometimes Never Never Never Yes Yes I would like to access ad hoc Yes I would like regular access Yes I would like to access ad hoc No Yes I would like regular access No Yes I would like regular access Would definitely use now Would not feel comfortable using Would not feel comfortable using Would definitely use now Would definitely use now Would definitely use now Would not feel comfortable using Would not feel comfortable using No Yes The cost for the person I care for to be looked after by someone else (eg day care, sitting services, respite care) Too hard to organise (eg complex systems, given up trying) Person I care for is reluctant to let anyone else care for them or doesn’t recognise they have care needs No-one to go away with if person I care for is being cared for elsewhere Feeling too guilty, or would worry too much Would help me keep going in my caring role Would enable me to work or undertake training or education Would enable me to do things that support my health and wellbeing such as leisure activities, meeting friends etc Would help me to manage my mental health/stress and emotions Would prevent me from burning out and needing care myself Would enable me to deal with my own health e.g. attend appointments, undergo treatment Would enable me to look after someone else e.g., childcare No Yes, continue to this section 60-69 Female Yes Heterosexual or straight White - English / Welsh / Scottish / Northern Irish / British 59 118385922444 Yes Adult Adult Sometimes Sometimes Never Sometimes Never Never Yes Yes I would like regular access Yes I would like regular access Yes I would like to access ad hoc Yes I would like regular access Yes I would like regular access Yes I would like regular access Yes I would like regular access Would definitely use now Would definitely use now Would definitely use now Would not feel comfortable using Might consider using in the future Would not feel comfortable using Would definitely use now Would not feel comfortable using Yes Yes The cost of the break for myself (eg can’t afford to go anywhere, even if no cost for the person I care for) Person I care for is reluctant to let anyone else care for them or doesn’t recognise they have care needs Not enough availability Unable to plan ahead due to circumstances of caring role Other commitments preventing Feeling too guilty, or would worry too much Would help me keep going in my caring role Would enable me to do things that support my health and wellbeing such as leisure activities, meeting friends etc Would help me to manage my mental health/stress and emotions Would prevent me from burning out and needing care myself Would enable me to deal with my own health e.g. attend appointments, undergo treatment No No, skip this section 60 118385658851 Yes 61 118385624761 Yes 62 118385569575 Yes Adult Never Never Sometimes Never Yes 63 118385479965 Yes 64 118385406145 Yes Child Child Sometimes Never Never Never Never Never Yes No Yes I would like to access ad hoc Yes I would like to access ad hoc No No Yes I would like regular access Yes I would like to access ad hoc Would not feel comfortable using Would definitely use now Might consider using in the future Might consider using in the future Would not feel comfortable using Would not feel comfortable using Would definitely use now Might consider using in the future Yes Yes Person I care for is reluctant to let anyone else care for them or doesn’t recognise they have care needs Don’t know how to organise/ where to get help Would enable me to work or undertake training or education No Yes, continue to this section Under 50 Female Yes Bisexual White - English / Welsh / Scottish / Northern Irish / British 65 118385333889 Yes Child Child Sometimes Never Never Never Never Sometimes Yes Yes I would like to access ad hoc Yes I would like regular access Yes I would like regular access Yes I would like to access ad hoc Yes I would like to access ad hoc Yes I would like to access ad hoc Yes I would like regular access Would not feel comfortable using Might consider using in the future Would not feel comfortable using Would definitely use now Would not feel comfortable using Would not feel comfortable using Might consider using in the future Would not feel comfortable using Yes Yes Don’t know how to organise/ where to get help Feeling too guilty, or would worry too much Would enable me to do things that support my health and wellbeing such as leisure activities, meeting friends etc Would help me to manage my mental health/stress and emotions Would prevent me from burning out and needing care myself Would enable me to look after someone else e.g., childcare No Yes, continue to this section Under 50 Female Yes Heterosexual or straight White - English / Welsh / Scottish / Northern Irish / British 66 118385308025 Yes Adult Adult Never Never Sometimes Sometimes Sometimes Sometimes Yes Yes I would like regular access Yes I would like regular access Yes I would like regular access Yes I would like regular access Yes I would like to access ad hoc Yes I would like to access ad hoc Might consider using in the future Would not feel comfortable using Would not feel comfortable using Might consider using in the future Would not feel comfortable using Would definitely use now Would not feel comfortable using Yes Yes The cost of the break for myself (eg can’t afford to go anywhere, even if no cost for the person I care for) Too hard to organise (eg complex systems, given up trying) Person I care for is reluctant to let anyone else care for them or doesn’t recognise they have care needs Feeling too guilty, or would worry too much Would help me keep going in my caring role Would enable me to work or undertake training or education Would enable me to do things that support my health and wellbeing such as leisure activities, meeting friends etc Would help me to manage my mental health/stress and emotions Would prevent me from burning out and needing care myself Yes Yes, continue to this section 50-59 Female Yes Heterosexual or straight White - English / Welsh / Scottish / Northern Irish / British 67 118385306265 Yes Child Child Sometimes Sometimes Sometimes Sometimes Sometimes Sometimes Yes Yes I would like regular access Yes I would like regular access Yes I would like to access ad hoc Yes I would like regular access Yes I would like regular access Yes I would like regular access Yes I would like regular access Would not feel comfortable using Would definitely use now Might consider using in the future Would definitely use now Would not feel comfortable using Might consider using in the future Might consider using in the future Might consider using in the future Yes Yes Don’t know how to organise/ where to get help Would help me keep going in my caring role Would enable me to work or undertake training or education Would help me to manage my mental health/stress and emotions Would prevent me from burning out and needing care myself Would enable me to deal with my own health e.g. attend appointments, undergo treatment No Yes, continue to this section 50-59 Female Yes Heterosexual or straight White - English / Welsh / Scottish / Northern Irish / British 68 118385305053 Yes Adult Adult Regularly Never Never Never Never Sometimes Yes No Yes I would like regular access Yes I would like to access ad hoc Yes I would like to access ad hoc Yes I would like to access ad hoc Yes I would like to access ad hoc Yes I would like to access ad hoc Would definitely use now Would definitely use now Would definitely use now Might consider using in the future Would not feel comfortable using Might consider using in the future Would definitely use now Might consider using in the future No Yes The cost for the person I care for to be looked after by someone else (eg day care, sitting services, respite care) The cost of the break for myself (eg can’t afford to go anywhere, even if no cost for the person I care for) Would enable me to do things that support my health and wellbeing such as leisure activities, meeting friends etc Would prevent me from burning out and needing care myself No Yes, continue to this section 70-79 Female Yes Heterosexual or straight White - English / Welsh / Scottish / Northern Irish / British 69 118384598557 Yes Both Child Sometimes Never Never Never Never Never Yes 70 118384041982 Yes Adult N/A Never Never Never Never Never Never Yes Yes I would like to access ad hoc Yes I would like to access ad hoc Yes I would like to access ad hoc No Yes I would like to access ad hoc Might consider using in the future Would definitely use now Might consider using in the future No Yes Person I care for is reluctant to let anyone else care for them or doesn’t recognise they have care needs Don’t know how to organise/ where to get help Unable to plan ahead due to circumstances of caring role Would help me keep going in my caring role Would enable me to do things that support my health and wellbeing such as leisure activities, meeting friends etc Would help me to manage my mental health/stress and emotions Would prevent me from burning out and needing care myself Would enable me to deal with my own health e.g. attend appointments, undergo treatment No Yes, continue to this section 50-59 Female Yes Heterosexual or straight White - English / Welsh / Scottish / Northern Irish / British 71 118382936848 Yes Adult Regularly Regularly Sometimes Regularly Regularly Regularly No Might consider using in the future Would not feel comfortable using Might consider using in the future Would not feel comfortable using Might consider using in the future Would not feel comfortable using Would definitely use now Would not feel comfortable using No No Person I care for is reluctant to let anyone else care for them or doesn’t recognise they have care needs Complexities around caring for more than one person Would help me to manage my mental health/stress and emotions Would prevent me from burning out and needing care myself Would enable me to look after someone else e.g., childcare No Yes, continue to this section 60-69 Female Yes Heterosexual or straight White - English / Welsh / Scottish / Northern Irish / British 72 118381931474 Yes Adult N/A Never Never Never Never Never Never Yes Yes I would like regular access Yes I would like regular access Yes I would like to access ad hoc Yes I would like to access ad hoc Yes I would like to access ad hoc Yes I would like to access ad hoc Yes I would like to access ad hoc Would not feel comfortable using Would definitely use now Might consider using in the future Might consider using in the future Would not feel comfortable using Would not feel comfortable using Would not feel comfortable using Would not feel comfortable using No Yes The cost for the person I care for to be looked after by someone else (eg day care, sitting services, respite care) The cost of the break for myself (eg can’t afford to go anywhere, even if no cost for the person I care for) Person I care for has needs which are too complex, are too difficult to find places Person I care for is reluctant to let anyone else care for them or doesn’t recognise they have care needs Not enough availability Complexities around caring for more than one person Unable to plan ahead due to circumstances of caring role Location of services not suitable Would help me keep going in my caring role Would enable me to work or undertake training or education Would enable me to do things that support my health and wellbeing such as leisure activities, meeting friends etc Would help me to manage my mental health/stress and emotions Would prevent me from burning out and needing care myself Would enable me to deal with my own health e.g. attend appointments, undergo treatment No Yes, continue to this section 50-59 Female Yes Gay or lesbian White - English / Welsh / Scottish / Northern Irish / British 73 118376485509 Yes Adult Adult Never Never Sometimes Never Never Yes 74 118378668351 Yes Adult N/A Never Never Never Never Never Never Yes Yes I would like regular access Yes I would like regular access Yes I would like regular access No No Yes I would like to access ad hoc Yes I would like regular access Would not feel comfortable using Would definitely use now Might consider using in the future Would not feel comfortable using Would not feel comfortable using Would not feel comfortable using Might consider using in the future Would not feel comfortable using No Yes The cost for the person I care for to be looked after by someone else (eg day care, sitting services, respite care) Too hard to organise (eg complex systems, given up trying) Person I care for is reluctant to let anyone else care for them or doesn’t recognise they have care needs Don’t know how to organise/ where to get help Not enough availability I do not trust other services to care for the person I look after Would help me keep going in my caring role Would enable me to do things that support my health and wellbeing such as leisure activities, meeting friends etc Would help me to manage my mental health/stress and emotions Would prevent me from burning out and needing care myself Would enable me to deal with my own health e.g. attend appointments, undergo treatment No Yes, continue to this section Prefer not to say Female Yes Heterosexual or straight White - English / Welsh / Scottish / Northern Irish / British 75 118378521999 Yes Adult N/A Never Never Never Never Never Never Yes Yes I would like regular access Yes I would like regular access Yes I would like regular access No No Yes I would like to access ad hoc Yes I would like regular access 76 118378444914 Yes Adult N/A Never Sometimes Sometimes Never Never Sometimes Yes Yes I would like regular access Yes I would like regular access Yes I would like regular access Yes I would like regular access Yes I would like regular access Yes I would like regular access No 77 118377562105 Yes Adult N/A Never Never Never Never Yes Yes I would like regular access Might consider using in the future Might consider using in the future Yes Yes Person I care for is reluctant to let anyone else care for them or doesn’t recognise they have care needs Would help me to manage my mental health/stress and emotions Would prevent me from burning out and needing care myself Yes Yes, continue to this section 50-59 Female Yes Bisexual White - English / Welsh / Scottish / Northern Irish / British 78 118377411592 Yes Child Sometimes Regularly Never Never Never Sometimes Yes No Yes I would like regular access Yes I would like to access ad hoc Yes I would like regular access Yes I would like to access ad hoc Yes I would like to access ad hoc Yes I would like to access ad hoc Would not feel comfortable using Might consider using in the future Would not feel comfortable using Might consider using in the future Would not feel comfortable using Would definitely use now Would not feel comfortable using Yes Yes The cost of the break for myself (eg can’t afford to go anywhere, even if no cost for the person I care for) Too hard to organise (eg complex systems, given up trying) Person I care for has needs which are too complex, are too difficult to find places Person I care for is reluctant to let anyone else care for them or doesn’t recognise they have care needs Don’t know how to organise/ where to get help Other commitments preventing Feeling too guilty, or would worry too much Would help me keep going in my caring role Would enable me to work or undertake training or education Would help me to manage my mental health/stress and emotions Would prevent me from burning out and needing care myself No Yes, continue to this section 50-59 Female Yes Prefer not to say White - English / Welsh / Scottish / Northern Irish / British 79 118377333767 Yes 80 118376927525 Yes 81 118376790992 Yes Adult N/A Sometimes Never Never Never Never Sometimes Yes Yes I would like to access ad hoc Yes I would like to access ad hoc No Yes I would like to access ad hoc No Yes I would like to access ad hoc No Might consider using in the future Might consider using in the future Might consider using in the future Would not feel comfortable using Would not feel comfortable using Would not feel comfortable using Might consider using in the future Would not feel comfortable using No Yes Too hard to organise (eg complex systems, given up trying) Unable to plan ahead due to circumstances of caring role Would enable me to do things that support my health and wellbeing such as leisure activities, meeting friends etc Would help me to manage my mental health/stress and emotions No Yes, continue to this section Under 50 Female Yes Bisexual White - English / Welsh / Scottish / Northern Irish / British 82 118376699744 Yes Child Child Never Never Never Never Never Never Yes Yes I would like to access ad hoc Yes I would like to access ad hoc Yes I would like to access ad hoc Yes I would like to access ad hoc Yes I would like to access ad hoc Yes I would like regular access Yes I would like to access ad hoc Would not feel comfortable using Would definitely use now Would definitely use now Would definitely use now Might consider using in the future Would definitely use now Would definitely use now Might consider using in the future No Yes The cost for the person I care for to be looked after by someone else (eg day care, sitting services, respite care) Too hard to organise (eg complex systems, given up trying) Person I care for is reluctant to let anyone else care for them or doesn’t recognise they have care needs Complexities around caring for more than one person Unable to plan ahead due to circumstances of caring role Feeling too guilty, or would worry too much I do not trust other services to care for the person I look after Would help me keep going in my caring role Would prevent me from burning out and needing care myself No Yes, continue to this section 50-59 Female Yes Heterosexual or straight White - English / Welsh / Scottish / Northern Irish / British 83 118376651867 Yes Adult N/A Regularly Sometimes Never Never Never Never Yes Yes I would like regular access Yes I would like to access ad hoc Yes I would like regular access Yes I would like regular access Yes I would like regular access Yes I would like regular access Yes I would like regular access Might consider using in the future Would definitely use now Would definitely use now Would definitely use now Would not feel comfortable using Would definitely use now Would definitely use now Would not feel comfortable using Yes Yes The cost for the person I care for to be looked after by someone else (eg day care, sitting services, respite care) The cost of the break for myself (eg can’t afford to go anywhere, even if no cost for the person I care for) Too hard to organise (eg complex systems, given up trying) Person I care for has needs which are too complex, are too difficult to find places Person I care for is reluctant to let anyone else care for them or doesn’t recognise they have care needs Don’t know how to organise/ where to get help Not enough availability Feeling too guilty, or would worry too much Would help me keep going in my caring role Would enable me to do things that support my health and wellbeing such as leisure activities, meeting friends etc Would help me to manage my mental health/stress and emotions Would prevent me from burning out and needing care myself Would enable me to deal with my own health e.g. attend appointments, undergo treatment No Yes, continue to this section 50-59 Female Yes Heterosexual or straight Prefer not to say 84 118376542919 Yes Adult N/A Regularly Sometimes Never Never Never Sometimes No 85 118376507925 Yes Adult N/A Never Never Never Never Never Never No 86 118376491949 Yes Adult Sometimes Sometimes Never Never Never Never Yes Yes I would like to access ad hoc Yes I would like to access ad hoc Yes I would like to access ad hoc No No No No Might consider using in the future Might consider using in the future Might consider using in the future Would definitely use now Would not feel comfortable using Would not feel comfortable using Would not feel comfortable using Would not feel comfortable using No No Person I care for has needs which are too complex, are too difficult to find places Person I care for is reluctant to let anyone else care for them or doesn’t recognise they have care needs Unable to plan ahead due to circumstances of caring role Would enable me to do things that support my health and wellbeing such as leisure activities, meeting friends etc Would help me to manage my mental health/stress and emotions Would prevent me from burning out and needing care myself No Yes, continue to this section 60-69 Male Yes Bisexual White - English / Welsh / Scottish / Northern Irish / British 87 118376485147 Yes Adult Regularly Regularly Never Sometimes Sometimes Sometimes Yes Yes I would like to access ad hoc Yes I would like to access ad hoc Yes I would like to access ad hoc Yes I would like to access ad hoc Yes I would like to access ad hoc Yes I would like to access ad hoc Yes I would like to access ad hoc Would not feel comfortable using Would not feel comfortable using Might consider using in the future Would not feel comfortable using Would not feel comfortable using Might consider using in the future Might consider using in the future Would not feel comfortable using Yes No The cost for the person I care for to be looked after by someone else (eg day care, sitting services, respite care) Not enough availability Feeling too guilty, or would worry too much Would help me keep going in my caring role Would enable me to do things that support my health and wellbeing such as leisure activities, meeting friends etc Would help me to manage my mental health/stress and emotions No No, skip this section 88 118374561414 Yes Child Child Never Sometimes Never Never Never Sometimes Yes Yes I would like to access ad hoc No No Yes I would like regular access Yes I would like to access ad hoc Yes I would like regular access No Might consider using in the future Might consider using in the future Would not feel comfortable using Might consider using in the future Would not feel comfortable using Might consider using in the future Would definitely use now Would not feel comfortable using No Yes Person I care for is reluctant to let anyone else care for them or doesn’t recognise they have care needs Complexities around caring for more than one person Feeling too guilty, or would worry too much I do not trust other services to care for the person I look after Would help me keep going in my caring role Would enable me to do things that support my health and wellbeing such as leisure activities, meeting friends etc Would help me to manage my mental health/stress and emotions Would prevent me from burning out and needing care myself No Yes, continue to this section Under 50 Male Yes Heterosexual or straight White - English / Welsh / Scottish / Northern Irish / British 89 118372703629 Yes Adult Adult Sometimes Never Never Never Never Never Yes Yes I would like regular access Yes I would like to access ad hoc No No Would not feel comfortable using Would definitely use now Would definitely use now Would definitely use now Might consider using in the future Would definitely use now Would not feel comfortable using Would not feel comfortable using Yes Yes Too hard to organise (eg complex systems, given up trying) Person I care for has needs which are too complex, are too difficult to find places Person I care for is reluctant to let anyone else care for them or doesn’t recognise they have care needs Not enough availability Complexities around caring for more than one person Location of services not suitable Would help me keep going in my caring role Would enable me to do things that support my health and wellbeing such as leisure activities, meeting friends etc Would help me to manage my mental health/stress and emotions Would prevent me from burning out and needing care myself No Yes, continue to this section 50-59 Female Yes Heterosexual or straight White - English / Welsh / Scottish / Northern Irish / British 90 118372607400 Yes Child Child Sometimes Sometimes Never Never Never Sometimes Yes Yes I would like to access ad hoc Yes I would like to access ad hoc Yes I would like to access ad hoc Yes I would like regular access Yes I would like regular access Yes I would like to access ad hoc Yes I would like regular access Would not feel comfortable using Might consider using in the future Might consider using in the future Might consider using in the future Might consider using in the future Might consider using in the future Would definitely use now Might consider using in the future Yes Yes Too hard to organise (eg complex systems, given up trying) Person I care for has needs which are too complex, are too difficult to find places Not enough availability Location of services not suitable Would help me keep going in my caring role Would enable me to do things that support my health and wellbeing such as leisure activities, meeting friends etc Would help me to manage my mental health/stress and emotions Would prevent me from burning out and needing care myself No Yes, continue to this section 50-59 Female Yes Heterosexual or straight White - English / Welsh / Scottish / Northern Irish / British 91 118326977542 Yes 92 118371844051 Yes Child Never Never Never Never Never Never Yes Yes I would like regular access No Yes I would like to access ad hoc Yes I would like to access ad hoc Yes I would like to access ad hoc Yes I would like to access ad hoc No Would not feel comfortable using Would definitely use now Would definitely use now Would definitely use now Would not feel comfortable using Would definitely use now Would definitely use now Might consider using in the future Yes Yes The cost for the person I care for to be looked after by someone else (eg day care, sitting services, respite care) Too hard to organise (eg complex systems, given up trying) Don’t know how to organise/ where to get help Would help me keep going in my caring role Would enable me to do things that support my health and wellbeing such as leisure activities, meeting friends etc Would help me to manage my mental health/stress and emotions Would prevent me from burning out and needing care myself Would enable me to deal with my own health e.g. attend appointments, undergo treatment No Yes, continue to this section Under 50 Female Yes Heterosexual or straight White - English / Welsh / Scottish / Northern Irish / British 93 118322941189 Yes Adult N/A Never Never Never Never Never Never Yes No No No Yes I would like regular access Yes I would like regular access No No Might consider using in the future Would definitely use now Would not feel comfortable using Might consider using in the future Would not feel comfortable using Would definitely use now Would not feel comfortable using Would not feel comfortable using Yes Yes Too hard to organise (eg complex systems, given up trying) Person I care for is reluctant to let anyone else care for them or doesn’t recognise they have care needs Other commitments preventing Would help me keep going in my caring role Would help me to manage my mental health/stress and emotions Would prevent me from burning out and needing care myself No Yes, continue to this section 60-69 Female Yes Heterosexual or straight White - English / Welsh / Scottish / Northern Irish / British 94 118367742630 Yes Child N/A Sometimes Sometimes Sometimes Never Never Sometimes Yes Yes I would like regular access Yes I would like to access ad hoc Yes I would like to access ad hoc Yes I would like to access ad hoc No Yes I would like regular access Yes I would like to access ad hoc Would not feel comfortable using Might consider using in the future Might consider using in the future Might consider using in the future Might consider using in the future Would definitely use now Would definitely use now Might consider using in the future Yes Yes The cost of the break for myself (eg can’t afford to go anywhere, even if no cost for the person I care for) Too hard to organise (eg complex systems, given up trying) Person I care for has needs which are too complex, are too difficult to find places Not enough availability Feeling too guilty, or would worry too much I do not trust other services to care for the person I look after Would help me keep going in my caring role Would enable me to do things that support my health and wellbeing such as leisure activities, meeting friends etc Would help me to manage my mental health/stress and emotions No No, skip this section 95 118367726871 Yes 96 118365879946 Yes Child Regularly Regularly Sometimes Never Never Regularly Yes Yes I would like to access ad hoc Yes I would like to access ad hoc Yes I would like to access ad hoc Yes I would like regular access Yes I would like regular access Yes I would like regular access Yes I would like to access ad hoc 97 118365815438 Yes 98 118364825668 Yes Child N/A Sometimes Regularly Never Never Never Sometimes Yes Yes I would like regular access Yes I would like to access ad hoc Yes I would like regular access No No Yes I would like regular access Yes I would like to access ad hoc Would not feel comfortable using Might consider using in the future Might consider using in the future Would definitely use now Would not feel comfortable using Would not feel comfortable using Would definitely use now Would not feel comfortable using No Yes Person I care for is reluctant to let anyone else care for them or doesn’t recognise they have care needs Would help me keep going in my caring role Would help me to manage my mental health/stress and emotions Would prevent me from burning out and needing care myself No No, skip this section 99 118364135524 Yes Child Child Sometimes Never Never Sometimes Sometimes Sometimes Yes Yes I would like to access ad hoc Yes I would like regular access Yes I would like to access ad hoc Yes I would like regular access Yes I would like to access ad hoc Yes I would like to access ad hoc Yes I would like to access ad hoc Might consider using in the future Might consider using in the future Might consider using in the future Would definitely use now Might consider using in the future Would definitely use now Might consider using in the future Might consider using in the future Yes No Too hard to organise (eg complex systems, given up trying) Person I care for is reluctant to let anyone else care for them or doesn’t recognise they have care needs Not enough availability Would help me keep going in my caring role Would enable me to do things that support my health and wellbeing such as leisure activities, meeting friends etc Would help me to manage my mental health/stress and emotions Would prevent me from burning out and needing care myself No Yes, continue to this section Under 50 Female Yes Heterosexual or straight White - English / Welsh / Scottish / Northern Irish / British 100 118363270692 Yes Adult N/A Never Never Never Never Never Sometimes Yes Yes I would like to access ad hoc Yes I would like to access ad hoc Yes I would like to access ad hoc Yes I would like to access ad hoc Yes I would like to access ad hoc Yes I would like regular access Yes I would like to access ad hoc Would not feel comfortable using Might consider using in the future Might consider using in the future Might consider using in the future Might consider using in the future Might consider using in the future Would definitely use now Might consider using in the future Yes Yes The cost of the break for myself (eg can’t afford to go anywhere, even if no cost for the person I care for) Person I care for has needs which are too complex, are too difficult to find places Would help me keep going in my caring role Would enable me to do things that support my health and wellbeing such as leisure activities, meeting friends etc Would help me to manage my mental health/stress and emotions Would prevent me from burning out and needing care myself Would enable me to deal with my own health e.g. attend appointments, undergo treatment No Yes, continue to this section 50-59 Female Yes Heterosexual or straight "Mixed - White and Black African Mixed - White and Asian"